Recently I replied to a tweet from @TomKindlon who posed the question: “What would you do if you were cured tomorrow?”
I answered quite quickly with the things that immediately sprung to mind, but I must admit, that question lingered with me and the more I’ve thought about it, the more things I’ve added to that list. It’s a hard one to contemplate because in reality, I am not going to wake up tomorrow cured. I am still ill, it is still on going, there is still no cure and the road ahead is still a long, frustrating, upsetting one. However, as with a good book or film, escapism from reality can be a release and I found it nice to dream for a while. So I thought I’d share with you my imagined “day in the life” if I woke up cured. (I’m also assuming that covers alopecia too and I’d have glorious locks again!)
I’d wake up in my own house/flat that I own because I can work full time again. I have a long shower where I’d use a hot oil treatment in my hair and luxuriate in shampoos and conditioners and revel in the fact I wouldn’t need a rest after my shower or at any point in my day until the evening! I’d style my hair, carefully apply make up, look at myself in the mirror and think, yes, today is a good day! I’d be able to choose a decent outfit because I would no longer be on tablets that caused weight gain and I’d be able to exercise because I don’t have pain or fatigue anymore to hold me back.
I’d then complete normal jobs around the house before jumping in my car, cranking up the radio and driving to meet friends for lunch…somewhere busy and social and with a beer garden so we can sit in the sun (Yes, I’m imagining Summer!) because I’m not longer sensitive to weather and I will tan and not burn!
I would then go to a travel agents and book a looooong, exciting holiday to places I can explore, meet new people and make memories. I won’t be worrying about money or being frivolous because I now cherish life, it’s not a rehearsal so work hard play hard has much more meaning. Following this I pop to the book shop to buy a real book because I can read again and I go home to sit in the sun, with a Kopperburg cider and read my book…it’s bliss.
As I sit in the garden, I don’t feel fatigued, I’m not worried about the brightness or the words blurring on the page. I don’t have to think about pacing or consider the guilt I feel for things I can’t do or contribute to because I am now able to contribute to society again. I can teach but also know that I don’t live to work. My health, family and friends are my priority and I will never again let work rule the roost. I reflect on how lucky I am to be surrounded by the people I have in my life, how they never gave up on me and how I know they never will.
I then go upstairs to have a bath because I recognise the importance of self care and quiet time. But also because I know that tonight I am hosting a party where everyone is coming round to eat, drink, play games and have a good time. Everything is organised and I’m not even thinking about the tidy up because I can manage it! I am grateful to be well, to be able to function as a normal human being and live a normal life doing all the things I love to do and after a brilliant music filled evening of taking silly photographs and laughing so hard your sides hurt, I climb into bed feeling exhausted. But good exhausted. Exhaustion that will be alleviated by the sleep I’m going to get. It won’t take me hours to get to sleep and I won’t wake up a gazillion times because of pain, I will dream and wake up to another day.